Références

Ressources :

Association Québécoise de l’Encéphalomyélite Myalgique

https://aqem.ca/aqem/

Bruce M. Carruthers et Marjorie I van de Sande. 2008. « Définition clinique et lignes directrices à l’intention des médecins, concensus Canadien ». Bibliothèque et Archives Canada. 28 pages.

https://aqem.ca/wp-content/uploads/2022/09/Consensus-canadien-abrege-FR.pdf

CDC, Centre for Disease Control and Prevention. Dernière révision 22 septembre 2023. « Myalgic encephalomyelitis/chronic fatigue syndrome ».

https://www.cdc.gov/me-cfs/healthcare-providers/index.html

CDC, Centers for Disease Control and Prevention. Consulté le 22 avril 2024. « Could You Have ME/CFS? (Myalgic encephalomyelitis/Chronic Fatigue Syndrome) ».

https://aqem.ca/wp-content/uploads/2022/05/Informations-sur-la-maladie-CDC-.pdf

Geneviève Morrow. 2023. « Prise en charge de l’encéphalomyélite myalgique / syndrome de fatigue chronique ». INESSS, Guides et normes. 73 pages.

https://www.inesss.qc.ca/fileadmin/doc/INESSS/Rapports/Usage_optimal/INESSS_EM_SFC_GN.pdf

NICE guideline. 2021. « Myalgic encephalomyelitis (or encephalopathy)/chronic fatigue syndrome: diagnosis and management ». NICE, Royal College of Physicians, 87 pages.

https://pubmed.ncbi.nlm.nih.gov/35438859/

PACING:

Bateman Horne Center. 2022. « ME/CFS Crash Survival Guide 1st Edition». Bateman Horne Center. 33 pages

https://batemanhornecenter.org/wp-content/uploads/filebase/crash_care/Aqua_Survival_Guide_Complete.pdf

C. (Linda) M. C. van Campen, Peter C. Rowe et Frans C. Visser. 2020. « Heart Rate Thresholds to Limit Activity in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Patients (Pacing): Comparison of Heart Rate Formulae and Measurements of the Heart Rate at the Lactic Acidosis Threshold during Cardiopulmonary Exercise Testing ». Advances in Physical Education, vol. 10, No. 2, p.138-154.

https://www.scirp.org/journal/paperinformation?paperid=100333#:~:text=For%20ME%2FCFS%20patient%2Dpacing,220%2Dage%20*%2055%25.

Health Rising. Consulté le 22 avril 2024. « Decoding the 2-day Cardiopulmonary Exercise Test (CPET) in Chronic Fatigue Syndrome (ME/CFS) ».

https://www.healthrising.org/blog/2019/01/17/decoding-2-day-cpet-chronic-fatigue-syndrome/#:~:text=Using%20the%20example%20in%20Appendix%201%2C%20and%20applying%20a%20multiplier,a%20far%20more%20disabling%20picture.

Kristine Anne Scordo, Misty M. Richmond, Nancy Munro. 2021. « Post-COVID-19 Syndrome: Theoretical Basis, Identification, and Management ». AACN Advanced Critical Care. 8 pages.

https://aacnjournals.org/aacnacconline/article-abstract/32/2/188/31445/Post-COVID-19-Syndrome-Theoretical-Basis?redirectedFrom=PDF

Julie Marcoux, Carrie McGinn, Sabrina Poirier, Philippe Latouche, Guyane Beaulieu. 2023. « Les bases du pacing ». Covid longue Québec. 34 pages.

https://drive.google.com/file/d/195t6kj3542HbLZRXVtBombUZW6RyIzPY/view?fbclid=IwZXh0bgNhZW0CMTEAAR2-R3Teo73l3g-pK9u2oIGJyxItir_SYR7yfCHpyYYgMCO72A1gGHYLrGE_aem_AaCzHc8zEioLncWxTWtzCpKpRItEZsSMTu8QWZIsqA9Vo4_1m9BdyBg6w6bYO813MOrUqvXEXsbxLODTBxykv2MD

ME Action. 2023. « Pacing and Management Guide for ME/CFS and Long COVID ».

https://www.meaction.net/wp-content/uploads/2023/02/Pacing-Guide-Clincians.FINAL2_.pdf

ME Action. Consulté le 14 avril 2024. « Pacing and Management Guide for ME/CFS ».

https://www.meaction.net/wp-content/uploads/2021/02/Pacing-and-Management-Guide-for-ME_CFS-9.pdf

Millions Missing France. 2020. « Pacing (1) : Partage d’expérience ».

https://millionsmissing.fr/article9/pacing-1-partage-d-experience#:~:text=Le%20pacing%20c'est%20fragmenter,une%20action%20de%20notre%20part).

Millions Missing France. Consulté le 22 avril 2024. « Les bases de la méthode du pacing ».

https://cloud.millionsmissing.fr/s/s8JHqZNoZ24oJGk

Livres :

Alex Howard. 2021. « Decode your fatigue, A Clinically Proven 12-Step Plan to Increase Your Energy, Heal Your Body and Transform Your Life ». Hay House, 255 pages.

Dan Neuffer. 2017. « CFS Unravelled, GET WELL by treating THE CAUSE not just the symptoms of CFS, FIBROMYALGIA, POTS & related syndromes ». Elednura Publishing, 3e édition, 345 pages.

Louise Hay. 1991. « The Power Is Within You ». Hay House, 256 pages.

Lucie Montpetit. 2009. « Se libérer de la fatigue persistance ». Les éditions de l’homme, 339 pages.

Raelan Agle. 2019. « Finding Freedom: Escaping from the prison od Chronic Fatigue Syndrome ». Independently published, 324 pages.

Sites internet :

Allergist find relief. Consulté le 23 avril 2024. « Wheat ».

https://acaai.org/allergies/allergic-conditions/food/wheat-gluten/

Allison Siebecker. Consulté 15 mars 2024. « SIBO – Small Intestinal Bacterial Overgrowth ».

https://www.siboinfo.com/

Beyond Celiac. Consulté le 23 avril 2024. « Symptoms of Non-Celiac Gluten Sensitivity ».

https://www.beyondceliac.org/celiac-disease/non-celiac-gluten-sensitivity/symptoms/

Children’s Hospital of Philadelphia. Consulté le 23 avril 2024. « The Signs and Symptoms of Gluten Sensitivity ».

https://www.chop.edu/news/signs-and-symptoms-gluten-sensitivity

Gouvernement du Canada, Instituts de recherche en santé du Canada. Consulté le 19 avril 2024. « Discussion sur l’encéphalomyélite myalgique avec la Dre Nina Muirhead ».

https://cihr-irsc.gc.ca/f/52474.html

Health Line. Consulté le 23 avril 2024. « The Most Common Signs of Gluten Intolerance ».

https://www.healthline.com/nutrition/signs-you-are-gluten-intolerant

Ma vie saine et moi. Consulté le 6 mai 2024. « Caséines bêta A1 et A2 du lait: différences et impacts sur la santé ».

https://maviesaineetmoi.com/caseines-beta-a1-a2/#:~:text=En%20effet%2C%20la%20%CE%B2%20cas%C3%A9ine,sa%20lib%C3%A9ration%20dans%20l'intestin

Miranda Lipton, The Gardian. Consulté le 23 avril 2024. « Vegetables are losing their nutrients. Can the decline be reversed? ».

https://www.theguardian.com/environment/2024/mar/28/vegetables-losing-nutrients-biofortification

MP, the Movement Paradigm, Integrative Health. Consulté le 18 avril 2024. « How to Map Your Own Nervous Sytem: The Polyvagal Theory ».

https://themovementparadigm.com/how-to-map-your-own-nervous-sytem-the-polyvagal-theory/

Passeport santé. Consulté le 22 avril 2024. « Le syndrome de fatigue chronique (L’encéphalomyélite myalgique) ».

https://www.passeportsante.net/fr/Maux/Problemes/Fiche.aspx?doc=syndrome-fatigue-chronique-pm-symptomes-du-syndrome-de-fatigue-chronique

Polyvagal institute. Consulté le 18 avril 2024. « What is The Polyvagal Theory? ».

https://www.polyvagalinstitute.org/whatispolyvagaltheory

Psychomédia. Consulté le 18 avril 2024. « Syndrome de fatigue chronique : un trouble de la production d’énergie dans les cellules ».

https://www.psychomedia.qc.ca/syndrome-de-fatigue-chronique/2017-02-17/trouble-metabolique

Psychomédia. Consulté le 18 avril 2024. « Fatigue chronique et fibromyalgie : une production de mauvaise énergie au cœur des deux syndromes ? ».

https://www.psychomedia.qc.ca/fibromyalgie/2017-06-04/syndrome-fatigue-chronique-cause-ethiopathogenique-commune

Wikipedia. Consulté 1 mai 2024. « Mitochondrial biogenesis ».

https://en.wikipedia.org/wiki/Mitochondrial_biogenesis

Articles :

Abdullah Shaito, Maryam Al-Mansoob, Salma M.S. Ahmad, Mohammad Z. Haider, Ali H. Eid, Anna Maria Posadino, Gianfranco Pintus et Roberta Giordo. 2023. « Resveratrol-Mediated Regulation of Mitochondria Biogenesis-associated Pathways in Neurodegenerative Diseases: Molecular Insights and Potential Therapeutic Applications ». Current Neuropharmacology, vol. 21, p. 1184-1201.

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10286596/

Abdulaziz Hassan Alhasaniah. 2022. « l-carnitine: Nutrition, pathology, and health benefits ». Saudi Journal of Biological Sciences, 30, 18 pages.

https://www.sciencedirect.com/science/article/pii/S1319562X22004715

Anna Bock. 2024. « Researchers See Hope in Symptom-Guided Exercise for Long COVID With Postexertional Malaise ».American Medical Association, 3 pages.

https://jamanetwork.com/journals/jama/article-abstract/2818254

Arezina N. Kasti, Maroulla D. Nikolaki, Kalliopi D. Synodinou, Konstantinos N. Katsas, Konstantinos Petsis, Sophia Lambrinou, Ioannis A. Pyrousis et Konstantinos Triantafyllou. 2022. « The Effects of Stevia Consumption on Gut Bacteria: Friend or Foe? ». Microorganisms, vol. 10, Issue 10, 12 pages.

https://www.mdpi.com/2076-2607/10/4/744

Björn Bragée, Anastasios Michos, Brandon Drum, Mikael Fahlgren, Robert Szulkin et Bo C. Bertilson. 2020. « Signs of Intracranial Hypertension, Hypermobility, and Craniocervical Obstructions in Patients With Myalgic Encephalomyelitis/Chronic Fatigue Syndrome ». Frontiers in Neurology, vol. 11, article 828, 8 pages

https://pubmed.ncbi.nlm.nih.gov/32982905/

C. (Linda) M. C. van Campen, Peter C. Rowe et Frans C. Visser. 2021. « Deconditioning does not explain orthostatic intolerance in ME/CFS (myalgic encephalomyelitis/chronic fatigue syndrome) ». National Library of Medecine, 10 pages.

https://pubmed.ncbi.nlm.nih.gov/33564792/

Corinne Leveau, Iurie Caraus, Anita Franco et Alain Moreau. 2023. « Exploring the eurocognitive consequences of post-exertional malaise in myalgic encephalomyelitis ». Journal of the Neurological Sciences, vol. 455, 122590, 1 page.

https://www.jns-journal.com/action/showPdf?pii=S0022-510X%2823%2902051-8

Cort Johnson. 2020. « Bad B-cells, Malfunctioning Mitochondria and “Could Happiness Help?” The IACFS/ME ME/CFS Zoom Conference Pt. III ». Health Rising, finding Answers for ME/CFS and FM.

https://urlz.fr/qjLl

Cort Johnson. 2020. « Oral Rehydration Solution More Effective than Saline IV at Improving Orthostatic Intolerance ». Health Rising, finding Answers for ME/CFS and FM, Blood Volume.

https://www.healthrising.og/blog/2020/09/15/saline-ors-oral-rehydration-pots-chronic-fatigue-syndrome/

Cort Johnson. 2020. « Long-Term Saline Use Improves Cardiovascular Functioning in ME/CFS: A Workwell Case Report ». Health Rising, finding Answers for ME/CFS and FM, Blood Volume.

https://www.healthrising.org/blog/2020/09/12/saline-chronic-fatigue-syndrome-cardiovascular-functioning/

Dr David A. Pérez Martínez. 2024. « Neurasthenia as a model of a disease thought to have disappeared. On an unpublished letter by Jean-Martin Charcot ». Neurosciences and Hystory, 2024, 12(1), p. 20-29.

https://nah.sen.es/vmfiles/vol12/NAHV12N1202420_29EN.pdf

David Mantle, Iain Parry Hargreaves, Joan Carles Domingo et Jesus Castro-Marrero. 2024. « Mitochondrial Dysfunction and Coenzyme Q10 Supplementation in Post-Viral Fatigue Syndrome: An Overview ». International Journal of Molecular Sciences, vol. 25, issue 1, 16 pages.

https://www.mdpi.com/1422-0067/25/1/574

Dario Lucas Helbing, Eva‑Maria Dommaschk, Lena Vera Danyeli, Edgars Liepinsh, Alexander Refsch, Zümrüt Duygu Sen, Liga Zvejniece, Tonia Rocktäschel, Leonie Karoline Stabenow, Helgi B. Schiöth, Martin Walter, Maija Dambrova et Bianca Besteher. 2023. « Conceptual foundations of acetylcarnitine supplementation in neuropsychiatric long COVID syndrome: a narrative review ». Springer, 17 pages.

https://link.springer.com/article/10.1007/s00406-023-01734-3

Elizabeth Coon. 2023. « Dysautonomie pure ». Le Manuel Merck.

https://www.merckmanuals.com/fr-ca/professional/troubles-neurologiques/syst%C3%A8me-nerveux-v%C3%A9g%C3%A9tatif/dysautonomie-pure

Eirini Apostolou et Anders Rosén. 2024. « Epigenetic reprograming in myalgic encephalomyelitis/chronic fatigue syndrome: A narrative of latent viruses ». Journal of Internal Medecine, 23 pages.

https://onlinelibrary.wiley.com/doi/10.1111/joim.13792

Evguenia Nepotchatykh, Iurie Caraus, Wesam Elremaly, Corinne Leveau, Mohamed Elbakry, Christian Godbout, Bita Rostami-Afshari, Diana Petre, Nasrin Khatami, Anita Franco et Alain Moreau. 2023. Circulating microRNA expression signatures accurately discriminate myalgic encephalomyelitis from fibromyalgia and comorbid conditions ». Scientific Reports, 13, 1896, 12 pages.

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Gina Rutherford, Philip Manning et Julia L. Newton. 2016. « Understanding Muscle Dysfunction in Chronic Fatigue Syndrome ». Journal of Aging Research, 13 pages.

https://ncbi.nlm.nih.gov/pmc/articles/PMC4779819/pdf/JAR2016-2497348.pdf

Hanna Markkula, Laura Mutanen, Evelina Leinonen et Tuuli Latvala. 2022. « Conférence internationale EM/SFC et Covid Long - Traitement et réadaptation ». Millions Missings France, 16 pages.

https://cloud.millionsmissing.fr/s/jmZjy6F4DdtcJFe

J. Semttrice, A. Vcrschucrcn et G. Scrratrice. 2013. « Systeme nerveux autonome ». EMC – Neurologie, vol. 10, n. 1. 18 pages.

Jesús Castro-Marrero, Maria Jose Segundo, Marcos Lacasa, Alba Martinez-Martinez, Ramon Sanmartin Sentañes et Jose Alegre-Martin. 2021. « Effect of Dietary Coenzyme Q10 Plus NADH Supplementation on Fatigue Perception and Health-Related Quality of Life in Individuals with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: A Prospective, Randomized, Double-Blind, Placebo-Controlled Trial ». Nutrients, vol. 13, issue 8, 16 pages.

https://pubmed.ncbi.nlm.nih.gov/34444817/

John R. Sheedy, Richard E.H. Wettenhall, Denis Scanlon, Paul R. Gooley, Donald P. Lewis, Neil McGregor, David I. Stapleton, Henry L. Butt et Kenny L. De Meirleir. 2009. « Increased D-Lactic Acid Intestinal Bacteria in Patients with Chronic Fatigue Syndrome ». In Vivo, Vol. 23, issue 4, p. 621-628

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https://papyrus.bib.umontreal.ca/xmlui/handle/1866/20404

Manual Thomas, Laura Froehlich, Daniel B.R. Hattesohl, Sonja Quante, Leonard A. Jason et Carmen Scheibenbogen. 2024. « Why the Psychosomatic View on Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Is Inconsistent with Current Evidence and Harmful to Patients ». Medicina, vol. 60, 83, Issue 1, p.1 à 10. https://doi.org/10.3390/medicina60010083

Manuela Simonato et all. 2021. « Tryptophan Metabolites, Cytokines, and Fatty Acid Binding

Protein 2 in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome ». Biomedicines 2021, 9, 1724, 17 pages.

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Marcelo Campos. 2023. « Leaky gut: What is it, and what does it mean for you? ». Harvard Health Publishing, Harvard Health Blog.

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Marcos Lacasa, Jose Alegre-Martin, Ramon Sanmartin Sentañes, Luisa Varela-Sende, Joanna Jurek et Jesus Castro-Marrero. 2023. « Yeast Beta-Glucan Supplementation with Multivitamins

Attenuates Cognitive Impairments in Individuals with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: A Randomized, Double-Blind, Placebo-Controlled Trial ». Nutrients, 15, 4504, 16 pages.

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Marvin S Medow, Kenneth Guber, Shilpan Chokshi, Courtney Terilli, Paul Visintainer et Julian M Stewart. 2019. « The Benefits of Oral Rehydration on Orthostatic Intolerance in Children with Postural Tachycardia Syndrome ». National Library of Medecine, vol. 214, p. 96-102.

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Michael Barnish, Mahsa Sheikh et Andrew Scholey. 2023. « Nutrient Therapy for the Improvement of Fatigue Symptoms ». Nutrients, vol 15, Iisue 9, 25 pages.

https://www.mdpi.com/2072-6643/15/9/2154

Mona Dehhaghi, Hamed Kazemi Shariat Panahi, Bahar Kavyani, Benjamin Heng, Vanessa Tan, Nady Braidy et Gilles J Guillemin. 2022. « The Role of Kynurenine Pathway and NAD+ Metabolism in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome ». Aging and Disease, vol. 13, Numéro 3, p. 698-711.

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Raju Lal Bhardwaj, Aabha Parashar , Hanuman Prasad Parewa et Latika Vyas. 2024. « An Alarming Decline in the Nutritional Quality of Foods: The Biggest Challenge for Future Generations’ Health ». Food journal, 13, 877, 26 pages

https://www.mdpi.com/2304-8158/13/6/877#:~:text=The%20principal%20causes%20of%20the,boost%20food%20production%3B%20improvements%20in

Richard Apps, Jinguo Chen, Foo Cheung, Amrita Mukherjee et Brian A. Sellers. 2024. « Deep phenotyping of post-infectious myalgic encephalomyelitis/chronic fatigue syndrome ». Nature Communications, 15:907, 29 pages

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Silvana Papagerakis, Raed Said, Farinaz Ketabat, Razi Mahmood, Meenakshi Pundir, Liubov Lobanova, Greg Guenther, Giuseppe Pannone, Kerry Lavender ,Blake R. McAlpin, Alain Moreau, Xiongbiao Chen et Petros Papagerakis. 2022. « When the clock ticks wrong with COVID-19 ». Clinical and Translational Medecine, 12, e949, 29 pages.

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Sonya Marshall-Gradisnik et Natalie Eaton-Fitch. 2022. « Understanding myalgic encephalomyelitis ».Science, vol. 377, issue 6611, p. 1150-1151.

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Øystein Fluge, Kristin Risa, Sigrid Lunde, Kine Alme, Ingrid Gurvin Rekeland, Dipak Sapkota, Einar Kleboe Kristoffersen, Kari Sørland, Ove Bruland, Olav Dahl et Olav Mella. 2015. « B-Lymphocyte Depletion in Myalgic Encephalopathy/ Chronic Fatigue Syndrome. An Open-Label Phase II Study with Rituximab Maintenance Treatment ». Journal Plos One, 30 pages.

https://pubmed.ncbi.nlm.nih.gov/26132314/

Tommi Raij et Kari Raij. 2024. « Association between fatigue, peripheral serotonin, and L-carnitine in hypothyroidism and in chronic fatigue syndrome ». Frontiers in Endocrinology, 10 pages.

https://www.frontiersin.org/journals/endocrinology/articles/10.3389/fendo.2024.1358404/full

Tihamer Molnar, Andrea Lehoczki, Monika Fekete, Reka Varnai, Laszlo Zavori, Szabina Erdo-Bonyar, Diana Simon, Tímea Berki et Peter Csecsei. 2024. « Mitochondrial dysfunction in long COVID: mechanisms, consequences, and potential therapeutic approaches ». GeroScience.

https://link.springer.com/article/10.1007/s11357-024-01165-5#citeas

Uday C. Ghoshal, Ratnakar Shukla et Ujjala Ghoshal. 2017. « Small Intestinal Bacterial Overgrowth and Irritable Bowel Syndrome: A Bridge between Functional Organic Dichotomy ». Gut and Liver, vol. 11, No. 2, p. 196-208.

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Vergauwen, K. 2024. « Physical activity, participation and health-related quality of life in chronic fatigue syndrome and multiple osteochondromas ». Maastricht University, 234 pages.

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Yousef Rezaei Chianeh, Ali Mansouri Mehrabani, Alireza Akhavan Kharazi, Mahsa Ghaffari et Faride Asgari. 2024. « Role of Nutritional Factors, Mitochondrial Dysfunction, Altered Body Composition and Various Biological Factors in Chronic Fatigue Syndrome ». Journal of Advances in Medical and Pharmaceutical Sciences, vol. 26, Issue 6, p. 23-36.

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